If you, someone you know, or someone to whom you are providing care is having changes in memory, thinking, or behavior, these resources can help. The Brain Health Journey is a set of useful resources to help you understand what may be happening and what steps you can take next.
For People with Brain Health Concerns, Care Partners, and Providers
Brain Health Journey: A Simple Overview
This one-page guide provides an overview of four key stages for someone with changes in their memory or thinking. This includes an overview of what might happen at each stage, including what you can expect at a visit with a healthcare provider.
For People with Brain Health Concerns and Care Partners
Navigating Changes in Brain Health
This interactive tool offers more detailed information on key stages of the care journey for someone with changes in memory and thinking. This resource is for people experiencing changes in memory or thinking, as well as family members and caregivers. You’ll find answers to common questions and links to trusted resources to support you along the way.
Coming SoonFor Healthcare Providers
Healthcare Provider Framework for Early Detection and Diagnosis of Cognitive Impairment
This framework provides a clear, step-by-step approach to identifying and diagnosing cognitive impairment. It outlines roles and responsibilities across primary care and specialty care, offers co-management recommendations, and supports timely movement from concern to diagnosis. This framework is for both the primary care team (i.e., primary care physicians, nurse practitioners, social workers, physician assistants, and nurses) and specialists.
Coming SoonInformed by Expertise and Lived Experience
These resources were made with direct input from people with lived experience and professional expertise. UsAgainstAlzheimer's convened two advisory groups that provided ongoing feedback through group discussions, one-on-one conversations, and document review.
A human-centered design firm led design efforts and regularly obtained feedback at every stage from both advisory groups. This process enhanced and refined tools to further ensure that the tools are practical, respectful, and responsive to real-world needs. Learn more about the committee members below.
- Lived experience advisory group: People living with mild cognitive impairment due to Alzheimer’s disease, people living with increased risk of Alzheimer’s disease (APOE e4 carriers), current and former caregivers to family members with Alzheimer’s disease, licensed clinical social workers, etc.
- Expert advisory group: dementia experts, general neurologists, primary care providers, specialists, researchers, licensed clinical social workers, and nurses.
UsAgainstAlzheimer’s is a nonprofit patient advocacy organization which aims to catalyze change in the health ecosystem to improve dementia prevention, early detection, and access to treatments through advocacy, policy, convening, and high-leveraged programs, with a particular focus on health equity. This project was made possible thanks to funding from sponsors Novo Nordisk and Bristol Myers Squibb.
